Huge changes to what has happened in my life since my last posting in 2011.
- Darren and I are divorced and live a very civil life. We are partners in ensuring we raise Olivia together as a team.
- I retired from the Police Department after 11 years of service.
- ALOT more but those close know the rest of them.....
Over the last several months there have been signs similar to those in which I had before I was originally diagnosed with Hodgkin's Lymphoma in 2010.
Deep breath to write this....
After over a year of a fight with my insurance company, I decided my stubbornness and selfishness needed to subside and just agree to a CT scan. With the type of cancer I had all I wanted was a PET scan. Not being in the medical field and reading all the bogus stuff it made it seem that was the ONLY option to find anything. I went and did the CT scan and it showed that there was an active malignant cyst on the right side of my neck and it was 1.5 cm. Last time it was the left side and it was 2.3 cm x 1.7 cm and you could see it when I turned my head. My oncologist was obviously concerned with the findings and FINALLY approval for a PET scan due to an abnormal CT.
Findings in the PET scan showed that there is, in fact what they are still calling a malignant cyst on the right side of my neck.
Today, I went back to my ENT that originally diagnosed all of this when I had the lump in my neck in 2010. He is also concerned about the SUV levels showing in my right tonsil. Next step is Wednesday to take a biopsy of my tonsil while I am AWAKE!!! (scary but less risk without going into the OR, my choice, hell I did a bone marrow biopsy awake) The SUV level in my tonsil showed to be double than this mystery cyst that showed and you can not feel.
Sooo...with all of this...
I am doing everything to ensure that my home life is Olivia is what it has been for the last two years. Nights of swimming have turned into making paper airplanes, coloring them and racing them. She sees that something is different with her Mommy. She sees me tired, sick, and just not myself. She is defensive to questions about certain things involving me just as I would be with her. She has been what has kept me grounded through all of this. Her smile and her voice alone is a natural medicine right now for me.
Everyday, I am thankful that her father and I are on a very civil level. This news hits home for both of us. Last time he took it hard, and with being single parents now the only way we both can take it is harder.
Most of this is shocking and confusing for my close friends and family. My sisters and my mother have been my saving grace on the hardest of days. My mother goes to EVERY appointment despite her busy schedule. We have laughed, cried, yelled and to later apologize. She is by far showing me what being a parent is all about, and for that I am BEYOND thankful!
As for my friends....
So many of those close to me know a lot about what is happening. I keep my anger, madness, hate to the disease, to myself until it hits me. You know like when you are at the top of a roller coaster you have never been on before and then wham....complete downfall. Those so close and true to me, have held my hand and made me realize that until I accept everything in front of me they are going NO WHERE and already have proven this.
Calls in the middle of the night questioning me to why I am awake and on facebook at 4 a.m...or that call to check on me and I fall apart into hysterics, within minutes were knocking on my door. If they are not able to knock on the door they have been on Skype or on the phone with me to help me through.
I am blessed for everyone that I can call a true friend.
In closing...
With everything going on, I am truly still doing my best to be optimistic. Hardest part is when you been down the road once and it was a nightmare, you don't want to go back down it. Who is to say next week, everything looked one way on the scans and the biopsies were all clear. I hope and pray for that to be the outcome.
Updates with be more frequent....PROMISE!